I thought that I would do a little run down on what it's like to get chemo. I had no clue before how this was done, but it's interesting to me so I figure it might be interesting to some of you. I'm sure that getting chemo is different for everyone depending on what type of chemotherapy you are getting, but this is what my experience is like.
*** Before I get started... take a look at this GORGEOUS quilt that my roommate from college made me! Miss Kimberlee made me this quilt specially for when I'm having my chemo treatments. She told me to think of it as a "group hug" from all of my friends, family, neighbors, everyone who is supporting me... wrapping their arms around me as I go through this. Thank you so much Kimberlee!!! I think that everyone there was jealous that I had such a fancy quilt... I got a lot of compliments on it!***
The day of chemo I go to the cancer center an hour before my chemo appointment. I get my blood drawn first thing and then sit in the waiting room for about 45 minutes while they read the results of my blood. Then I go and meet with the nurse practitioner and we go over my blood work and she answers any questions, gives me prescriptions if I need something or need refills. If my blood counts are good then I get to go have chemo. If they are not... then I don't! So far they have been "outstanding" so I've gone in to get the chemo.
At the place that I go to they have an infusion room. It's a large room that has a nurses station like a hospital does. Then there are groupings of chairs. Four chairs in a square with about 5 or 6 of these groups in a room (I hope that makes sense...). Each chair in the quad is a patient chair. They are nice, recliners, with a pillow and a blanket. Each station has a t.v. that you can watch and also a companion chair so that if someone comes with you they can sit in the companion chair. When I come in they take all my vitals and direct me to a chair and get assigned to an infusion nurse. They start an IV (well... not anymore ;)) and the first hour they give me anti nausea medication and an antihistamine in case I have any allergic reactions. They also give me a Tylenol and I sit tight for the first hour of "prep drugs" to go through my IV.
Then the chemo starts. I get four chemo drugs, Adriamycin, Bleomycine, Vinblastine, and Dacarbazine... or in other words... ABVD. They start from the least toxic to the most toxic. I get the bleomycin first which is in a drip bag on my IV poll. Then the adriamycin and the vinblastine and done with a big ole' syringe that my nurse pushes through my IV. She said that by getting these drugs faster it causes less side affects. Dacarbazine is last and it's a killer... that one burns the whole time it's going in and it takes about an hour for that one alone. This one is also in a drip bag on the IV poll. Once all the drugs are in you then you are done! Free to go!
The whole infusion room process takes about 3 1/2 hours. There is a volunteer lady that comes around with a snack cart and hands out snacks and drinks to whoever wants them. I think that's nice. The nurses are super nice and I usually end up talking to them for most of the time that I'm sitting there. They have blankets if you get cold, they try to make you as comfortable as they can. I usually bring my knitting and a book and that keeps me pretty occupied while I'm doing all of this.
The day after I get chemo I go back to the cancer center and get a shot called Neulasta. This shot causes my body to go into hyper drive producing white blood cells. About 5-7 days after getting chemo your white blood cells drop which compromises your immune system and makes you feel super crappy!! With the Neulasta, your body over produces white blood cells so that when the drop happens you should have enough new white blood cells to cover those that you lost. The bad part about this shot is the days before your white cells drop your bones just ache... they are over filled and it makes for some terrible bone pain! Mainly the bones that produce bone marrow like your hips, femur, sternum, and jaw.
Then the week after chemo I go back to the cancer center... get my blood drawn... wait 45 minutes for the results... meet with the nurse again to go over everything... and so the story goes.
So that is basically how it is. Lots of time waiting around... lots of getting poked... blood pressure cuffs... that's the life of a cancer patient.
One of the nurses there gave me some great advice. He said that when I'm there and getting all this stuff done and going through this I can feel sorry for myself. But when I leave the building and go home I need to try to make my life as normal as possible. Do the things that I love to do, focus on all the things in life that make me happy. I've been really trying to do that. Leave the cancer at the cancer center and have my full wonderful life when I leave. I think that as time goes on it will be easier to do that. I'm still trying to just get used to all of this and figure everything out so that I can be as normal as possible.
Anyway... that was long but I wanted to get down how the process goes!
10 comments:
Thank-you for sharing this. I really am quite ignorant about the cancer treatment process and feel like I have learned so much from reading about your experiences.
I'll confess I cried when reading your post below about your past week. It sounds so miserable, and I am so sorry that you are having to go through that. Good for you for asking for another option (the port). I always think it is good to listen to your body and be an advocate for yourself and what you need. Good luck tomorrow. Lots of prayers for you!
That was really interesting to read, Megan, especially since I really didn't know much about the process. It sounds painful, intrusive, and very time consuming. I'm sorry you have to do this.
I'm impressed with your outlook. You seem to be able to ride out your emotions on both the highs and the lows while still keeping some perspective and a sense of humor. I really appreciate you sharing your feelings and experiences.
ah meg. you are seriously such a brave person. i know i've said that before--but i mean it whole heartedly. I just cry when I read your blog entries, you are such a great example.
praying for you always. maybe you should plan a getaway to hawaii when this is all over and we'll set up the rental for you and baby sit whenever you want :)
Thank you for sharing. I have always wondered what one does for a "chemo treatment". I didn't realize it took that long.
You are one super strong women! I know your husband and son are super strong as well!
I love that nurses advise.
Shadows Creep
Yeah, I had no idea how it all worked. That's interesting, I'm really glad you shared. Berlee did a wonderful job on that quilt! It's beautiful!
Man... what a process!!! Hang in there girl!!! Love ya tons... you are my hero! And a HUGE thanks to Nurse Trent for taking such AWESOME care to you!!! XOXOXO
You are incredible! And that's really good info to know, I had no idea of the process!
I have to say that that is pretty close to what I went through too. Only I got my 'push' drugs (in the syringes) first, then the 2 drip ones. And I have to warn you, the port is great for the drugs, but they have to flush it between all of them, and the stuff tastes horrible. I don't know why you can taste it, but its bad. I still have flashbacks where I think I can taste it again. So glad to be done with that.
That is great that you have tv's and stuff. Our room was one big one with all the chairs facing the middle of the room, along the edge. They had two private rooms with tv's. Nik usually brought his computer and we watched movies, or I just slept. That was the best.
I hope the port makes things better! Good luck!
Thanks for sharing. I have been wondering what the treatments are like. It is a lot more involved than I would have thought.
You need to publish a book! Reading your blog is a wonderful, eye-opening experience! Thank you for sharing your knowledge and heart! Love ya!!!
PS What a beautiful quilt with a beautiful story!!!
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