Indeterminate...

So I saw the doc today. Doctor Bob we like to call him, I'm still not convinced that he really knows what he's talking about most of the time... but that's a whole other issue.

First thing he says when he walks in the room is, "Did you ever get a bone marrow biopsy?" Ummm... excuse me? Are you really asking me this question. "Yes, I did, it was clean." "Oh. Okay, that's good." Wow... he has been treating me for the last five months and didn't have a clue if my bone marrow was clean? That's scary to me... I was afraid he was going to want to do another one, but he did not. Holy cow...

So anyway... the scan results came back not as wonderful as I had hoped. It said that there was some low level activity up by my aorta. All of the lymph nodes are normal size, so the tumors are gone, but this one little area lit up on the scan.

In doctor language, "Your scan showed intermediate activity, so it's indeterminate if you have active cancer or not." The game plan is that we wait. We wait three months and then I have to do another Pet scan and a CT scan to see if it has grown at all. If it's grown, then I still have active cancer. If it hasn't grown, then it's probably scar tissue from the chemo.

Honestly, I've known this since last Friday when I went and picked up my scan results myself from the radiology place. Did you know that you can do that? Whenever you have any type of test done like this, biopsy or scan, you can go get your own results because they are YOUR medical records. But I obviously needed to talk to my doctor before I really knew what was going on with this because I wasn't sure what he was going to want to do. I was honestly pretty nervous that he was going to want to start radiation, so I'm really relieved today that he wants to wait it out.

I'm not nervous. My scan in December showed no activity and then I did 8 more treatments after that. My other friends who have had Hodgkin's have had similar results in their scans after chemo. In the same spot even. So I honestly think that's it's probably just scar tissue.

I have to leave my port in until we know for sure... which is a bummer but it's really not that bad. I have to go have it flushed ever six weeks. I had it flushed today and that was not fun. It hurts and you can taste the saline and heparin in your mouth when they do it. But I'm not on chemo right now which is wonderful. My hair is growing in and I'm getting my energy back. I've been working out and feeling really great. So yes, I'm happy, I feel good. We will just see what everything says in 3 months!